Table 5 FamPALcare Helpfulness ratings by participants at 6-months
Rate how much you agree with the following from 1 to 5, strongly disagree/not helpful (score = 1) and strongly agree/very helpful (score = 5) | Mean (SD) |
|---|---|
1. Seeing the illness trajectory graph, I can anticipate common symptoms in advanced heart failure (i.e., breathlessness, depression, anxiety, fatigue). | 4.33 (0.52) |
2. The nurse showed me strategies to manage the symptoms of advanced heart failure at home (how to manage breathlessness, fatigue, depression, etc.). | 4.83 (0.41) |
3. It is important to learn about care choices about advance heart failure for comfort and supportive care when my symptoms become worse (e.g. Hospice Care, Home Health Care, or Home Hospice Care, etc.). | 4.67 (0.52) |
4. It is important to bring an Advance Directive and related forms to the clinic appointment to discuss with health care providers. | 4.67 (0.52) |
5. Documenting my advance heart failure care options in the Advance Directive form will assure that my wishes will be honored. | 4.67 (0.52) |
6. The discussion about available resources and/or home assistance in my community to support home care for my family was useful. | 4.50 (0.84) |
7. It was helpful having a nurse (trained health care staff) provide step-by-step guidance and information on care options for advance heart failure. | 4.67 (0.52) |
8. The explanation of the Advance Directive, POST (pink form including a do-not-resuscitate order), Living Will, and/or Durable Power of Attorney for Healthcare was helpful. | 4.83 (0.41) |
9. The nurse gave me time to ask questions about care options. | 4.67 (0.52) |
10. I was comfortable during the discussion with the nurse. | 4.67 (0.52) |
11. Overall, I feel comfortable discussing my care options and wishes with my family and healthcare provider. | 4.83 (0.41) |