| Control | Intervention | Total Intervention | |||||
---|---|---|---|---|---|---|---|---|
 | Baseline (N = 8) | 3 Months (N = 5) | 6 Months (N = 3) | Baseline (N = 6) | 3 Months (N = 4) | Pre (N = 14) | Post (N = 7) | |
RAND SF-36 | ||||||||
 Physical functioning | ||||||||
  Mean (SD) | 66.9 (34.8) | 58.3 (33.3) | 77.0 (23.9) | 88.8 (10.3) | 80.0 (23.5) | 74.6 (30.3) | 78.3 (22.2) | |
  Missing | 0 (0%) | 0 (0%) | 0 (0%) | 2 (33.3%) | 0 (0%) | 2 (14.3%) | 0 (0%) | |
 Role limitations due to physical health | ||||||||
  Mean (SD) | 68.8 (43.8) | 50.0 (43.3) | 45.0 (51.2) | 95.0 (11.2) | 81.3 (23.9) | 76.9 (36.0) | 61.1 (43.5) | |
  Missing | 0 (0%) | 0 (0%) | 0 (0%) | 1 (16.7%) | 0 (0%) | 1 (7.1%) | 0 (0%) | |
 Role limitations due to emotional problems | ||||||||
  Mean (SD) | 83.3 (35.6) | 55.6 (50.9) | 80.0 (44.7) | 72.2 (25.1) | 83.3 (19.2) | 76.2 (30.5) | 81.5 (33.8) | |
 Energy/Fatigue | ||||||||
  Mean (SD) | 53.1 (25.2) | 38.3 (20.8) | 44.0 (23.6) | 63.8 (13.1) | 52.5 (23.3) | 59.2 (17.7) | 47.8 (22.4) | |
  Missing | 0 (0%) | 0 (0%) | 0 (0%) | 2 (33.3%) | 0 (0%) | 2 (14.3%) | 0 (0%) | |
 Emotional well-being | ||||||||
  Mean (SD) | 81.5 (19.8) | 86.7 (8.33) | 76.8 (14.5) | 82.7 (10.0) | 71.0 (13.6) | 83.7 (15.2) | 74.2 (13.6) | |
 Social functioning | ||||||||
  Mean (SD) | 73.4 (22.6) | 83.3 (19.1) | 72.5 (22.4) | 79.2 (20.4) | 84.4 (12.0) | 81.3 (18.8) | 77.8 (18.5) | |
 Pain | ||||||||
  Mean (SD) | 71.3 (25.9) | 70.8 (42.2) | 69.5 (21.2) | 69.6 (18.9) | 61.9 (13.9) | 71.3 (23.2) | 66.1 (17.7) | |
 General health | ||||||||
  Mean (SD) | 71.3 (23.2) | 70.0 (NA) | 80.0 (NA) | 80.0 (7.07) | 70.0 (NA) | 81.0 (9.62) | 75.0 (7.07) | |
  Missing | 4 (50.0%) | 2 (66.7%) | 4 (80.0%) | 4 (66.7%) | 3 (75.0%) | 9 (64.3%) | 7 (77.8%) | |
PROMIS Self-Efficacy | ||||||||
 Managing Emotions (8a) T-Score | ||||||||
  Mean (SD) | 53.9 (12.1) | 51.9 (7.09) | 49.9 (10.2) | 52.8 (6.41) | 49.4 (0.500) | 53.4 (9.08) | 49.7 (7.19) | |
 Managing Medications and Treatment (8a) T-Score | ||||||||
  Mean (SD) | 53.0 (8.21) | 58.9 (2.94) | 52.5 (13.6) | 56.7 (4.76) | 56.3 (5.82) | 56.1 (5.93) | 54.2 (10.4) | |
 Managing Daily Activities (8a) T-Score | ||||||||
  Mean (SD) | 52.4 (9.31) | 53.1 (1.67) | 54.8 (10.5) | 58.0 (4.15) | 55.4 (7.36) | 55.7 (7.03) | 55.0 (8.68) | |
PROMIS Quality of Social Support | ||||||||
 Companionship (4a) T-Score | ||||||||
  Mean (SD) | 53.3 (6.88) | 47.3 (3.23) | 55.2 (11.7) | 55.0 (7.55) | 54.7 (10.2) | 53.2 (7.58) | 55.0 (10.4) | |
 Emotional Support (4a) T-Score | ||||||||
  Mean (SD) | 56.7 (6.73) | 52.8 (7.97) | 55.4 (9.35) | 55.1 (6.24) | 54.6 (5.53) | 54.5 (6.64) | 55.1 (7.44) | |
 Instrumental Support (4a) T-Score | ||||||||
  Mean (SD) | 59.6 (7.76) | 53.0 (9.32) | 51.8 (9.83) | 54.0 (13.3) | 53.6 (6.45) | 55.6 (10.8) | 52.6 (8.05) | |
 Informational Support (6a) T-Score | ||||||||
  Mean (SD) | 59.7 (12.7) | 57.4 (18.6) | 58.5 (10.3) | 58.3 (5.93) | 58.3 (5.97) | 59.0 (10.3) | 58.4 (8.16) | |
Short – Positive Aspects of Caregiving (S-PAC) | ||||||||
 Overall | ||||||||
  Mean (SD) | 29.4 (8.70) | 28.0 (4.36) | 30.4 (15.3) | 29.5 (5.28) | 35.0 (5.35) | 29.9 (5.61) | 32.4 (11.6) | |
 Self-Affirmation | ||||||||
  Mean (SD) | 22.3 (5.57) | 20.3 (3.06) | 21.8 (11.0) | 21.5 (4.18) | 24.5 (4.04) | 22.2 (3.95) | 23.0 (8.29) | |
 Outlook on Life | ||||||||
  Mean (SD) | 7.13 (3.60) | 7.67 (1.53) | 8.60 (4.34) | 8.00 (1.90) | 10.5 (1.91) | 7.71 (2.46) | 9.44 (3.43) | |
uMARS | ||||||||
 Information Mean Score | ||||||||
  Mean (SD) |  |  | 4.00 (0.43) |  | 3.94 (0.72) |  | 3.96 (0.57) | |
  Missing |  |  | 2 (40.0%) |  | 0 (0%) |  | 2 (22.2%) | |
 Total Score | ||||||||
  Mean (SD) |  |  | 2.64 (0.074) |  | 3.17 (0.54) |  | 2.94 (0.48) | |
  Missing |  |  | 2 (40.0%) |  | 0 (0%) |  | 2 (22.2%) |