Table 1 Categories, subcategories, and codes for analysis of primary caregiver end-of-life experiences of patients with non-cancer disease seen in an emergency department in 2021
Categories | Subcategories | Codes |
|---|---|---|
Considering the emergency department environment | Infrastructure–System Operations | Arrival at the service, waiting for attention, influences, priority, family visit, environments, inputs |
Hospital Staff | Physicians, nurses, security personnel, clerical, medical report | |
Caregiver-Patient | Emotions, treatment received, expectations, treatment received, nasogastric tube, bedsores, accompaniment by the family member | |
Considering other aspects of the health system | Hospitalization area | Staff care (nursing and medical), hospital discharge, ancillary examinations, COVID-19 |
Home care | Home visits, primary care physician, COVID-19 | |
Transfer to the hospital | Distance from home, hospital discharge, who indicates need for emergency care, who moves patient, transfers | |
Outpatient care | Outpatient consultations, COVID-19, administrative formalities, virtual support | |
Assuming care at home | With the patient | Patient’s condition, who is caring for patient, care required, treatment received |
With the family | Effect on family life, who takes care of family | |
Facing the end of life | Expectation and quality of life | Quality of life, expectation in the face of death |
Palliative care | What is palliative care, have they received it, the needs of palliative care |