From: Social support sources for people with palliative care needs at home: a scoping review
Recent research After we performed our search and analysed the included articles, several articles have been published on the topic of social support sources for people with palliative care needs at home. Additional to our initial search, we have repeated our search string for records published between June 1, 2023 and November 1, 2024 and identified over 500 unique publications. After having scanned these additional articles, we want to allude to certain publications. The relevance of dividing social support into emotional and instrumental needs, supplemented with informational needs, the need for social companionship and the need to belong to a group or to get appraisal is shown by both Kasdorf et al. [65] and Quintiens et al. [66]. • Kasdorf et al. [65] highlight that people in the last year of life and their relatives often have unmet information support needs that affect all other social support needs. They suggest that the availability of a ‘buddy’ might lower the risk of an unwanted inpatient death. • Quintiens et al. [66] show that the type of social support needed affects the willingness of people in the community to provide social support to others. On the crucial role of the informal caregiver in the provision of social support, • Tripidoro et al. [67], state that the informal caregiver role “requires better support from society, healthcare teams and family systems” [67]. Also, they show how socio-culture values drive the informal caregiving role and how socio-cultural mandates on caregiving can be reinforced by healthcare providers. There are publications that continue on the articles analysed in this review: • In our review we included an article on the HELP-project in Australia, recently findings of a HELP Ottowa project (Canada) were published by Van Vliet et al. [68]. • Bradley et al. [59] report on the beneficiary of social support groups in hospice day services; • And Hansford et al. [69] conclude in their paper that “local community organizations are well placed to support people at end of life” [69]. |