Table 2 Summary of categories and subcategories

1. Diagnostic Experiences

I. Initial identification and

II. impression

III. Seeking answers and medical attention

IV. Delayed diagnosis

V. Misdiagnosis

2. Physical Experiences

I. Daily caregiving challenges

II. Caregiver physical strain

3. Financial Challenges

I. Medical expenses

II. Career sacrifices

4. Psychological Distress

I. Depressive behaviours

II. Heightened tension

5. Social and spiritual Experiences

I. Stigmatisation and social isolation

II. Social support

III. Search for spiritual support and meaning