Table 5 Overview of themes
Emergence of crisis | The crisis situation-factors leading to crisis | Strategies to overcome crisis and wishes | |||
|---|---|---|---|---|---|
• Context of crisis • Acute and cumulative crisis | Structural factors • Distance to providers • Access and communication with health care professionals • Rotating staff • Bureaucracy | Illness related factors • Symptoms • Illness trajectory • Disease-dependent access to specialized palliative care | Emotional and psychological burden of family caregivers • Emotional burden • Psychological burden | Intensity of care involvement • Living in the same household • Sleep deprivation | • Involvement of social network • Searching for information • Learning new skills • Regeneration • Finding a meaning and further psychosocial support • Hospitalisation |