Actual needs of patients with amyotrophic lateral sclerosis: a qualitative study from Wuhan, China

BMC Palliative Care

Table 1 Interview information and characteristics of the participants (n = 22)

Participants	Age group	Gender	Educational level	Marital status	Family-Caregiver(s)	Months since ALS diagnosis	Site of onset	ALSFRS-R
P1	50–55	Male	Undergraduate	Married	Spouse	13	Bulbar onset	25
P2	55–60	Female	Junior college	Married	Spouse	12	Limb onset	30
P3	60–65	Male	NA	Married	Spouse	5	Limb onset	44
P4	55–60	Female	Junior High School	Married	Spouse	12	Bulbar onset	NA
P5	40–45	Male	Undergraduate	Married	Elders	9	Limb onset	35
P6	50–55	Male	Junior college	Married	Son	9	Limb onset	31
P7	40–45	Female	Technical Secondary School	Married	Aunt	6	Limb onset	40
P8	35–40	Male	Undergraduate	Married	Father	12	Limb onset	43
P9	45–50	Male	NA	Married	Spouse	53	Bulbar onset	NA
P10	45–50	Male	Undergraduate	Married	Brother	17	Limb onset	38
P11	50–55	Male	Junior college	Married	None	6	Limb onset	48
P12	35–40	Female	Undergraduate	Married	Spouse	9	Limb onset	31
P13	55–60	Male	Junior college	Married	None	10	Limb onset	NA
P14	45–50	Male	NA	Married	Aunt	5	Limb onset	29
P15	45–50	Female	Technical Secondary School	Married	Spouse	8	Limb onset	30
P16	30–35	Male	Junior college	Married	Mother	17	Limb onset	20
P17	55–60	Female	NA	Married	Spouse	6	Limb onset	46
P18	45–50	Male	Junior college	Married	Brother	25	Limb onset	25
P19	50–55	Male	primary school	Married	NA	5	Limb onset	NA
P20	40–45	Male	Technical Secondary School	Married	Spouse	6	Limb onset	NA
P21	30–35	Female	Undergraduate	Married	Spouse	27	Bulbar onset	11
P22	40–45	Female	Undergraduate	Single	Niece	24	Limb onset	33

ISSN: 1472-684X