Table 2 IPOS-Dem item characteristics staff version

Pain ^a

n (%)

12

4.70%

79

32.20%

79

32.20%

56

22.90%

25

10.20%

6

2.40%

Shortness of breath ^a

n (%)

4

1.60%

213

84.20%

26

10.30%

10

4%

2

0.80%

2

0.80%

Weakness ^a

n (%)

3

1.20%

65

25.60%

80

31.50%

57

22.40%

35

13.80%

17

6.70%

Nausea ^a

n (%)

16

6.20%

212

88%

18

7.50%

5

2.10%

5

2.10%

1

0.40%

Vomiting ^a

n (%)

9

3.50%

229

92.30%

11

4.40%

4

1.60%

2

0.80%

2

0.80%

Poor appetite ^a

n (%)

10

3.90%

131

53%

64

25.90%

33

13.40%

10

4%

9

3.60%

Constipation ^a

n (%)

14

5.40%

139

57.20%

66

27.20%

24

9.90%

10

4.10%

4

1.60%

Sore or dry mouth ^a

n (%)

17

6.60%

183

76.20%

28

11.70%

21

8.80%

6

2.50%

2

0.80%

Drowsiness ^a

n (%)

2

0.80%

61

23.90%

80

31.40%

70

27.50%

29

11.40%

15

5.90%

Poor mobility ^a

n (%)

1

0.40%

106

41.40%

41

16%

44

17.20%

35

13.70%

30

11.70%

Sleeping problems ^a

n (%)

11

4.30%

151

61.40%

54

22%

30

12.20%

5

2%

6

2.40%

Diarrhoea ^a

n (%)

9

3.50%

197

79.40%

36

14.50%

10

4%

3

1.20%

2

0.80%

Dental problems ^a

n (%)

10

3.90%

182

73.70%

32

13%

20

8.10%

9

3.60%

4

1.60%

Swallowing problems ^a

n (%)

6

2.30%

183

72.90%

32

12.70%

14

5.60%

12

4.80%

10

4%

Skin breakdown ^a

n (%)

5

1.90%

115

45.60%

73

29%

41

16.30%

19

7.50%

4

1.60%

Difficulty communicating ^a

n (%)

2

0.80%

83

32.50%

50

19.60%

50

19.60%

36

14.10%

36

14.10%

Hallucinations and/or delusions ^a

n (%)

18

7%

148

61.90%

47

19.70%

30

12.60%

7

2.90%

7

2.90%

Agitation ^a,b

n (%)

2

0.80%

72

28.20%

60

23.50%

66

25.90%

37

14.50%

20

7.80%

Wandering ^a

n (%)

4

1.60%

144

56.90%

40

15.80%

36

14.20%

21

8.30%

12

4.70%

Anxious or worried ^a,b

n (%)

3

1.20%

54

21.30%

55

21.70%

87

34.30%

46

18.10%

12

4.70%

Family anxious or worried ^a,b

n (%)

50

19.50%

69

33.30%

38

18.40%

52

25.10%

23

11.10%

25

12.10%

Felt depressed ^a,b

n (%)

26

10.10%

64

27.70%

58

25.10%

75

32.50%

29

12.60%

5

2.20%

Lost interest ^a,b

n (%)

37

14.40%

95

43.20%

54

24.50%

38

17.30%

24

10.90%

9

4.10%

Inner peace ^a,b,c

n (%)

40

15.60%

38

17.50%

84

38.70%

62

28.60%

27

12.40%

6

2.80%

Able to interact ^a,b,c

n (%)

5

1.90%

82

32.50%

44

17.50%

54

21.40%

46

18.30%

26

10.30%

Irritable or aggressive ^a,b

n (%)

3

1.20%

68

26.80%

67

26.40%

90

35.40%

23

9.10%

6

2.40%

Practical matters ^a,b,c

n (%)

19

7.40%

76

31.90%

92

38.70%

48

20.20%

10

4.20%

12

5%