Table 3 Role burden of caregiving
Variable | n (%) |
|---|---|
Other family and friends helping with caregiving1 | Â |
 Yes | 358 (69.8) |
 No | 155 (30.2) |
How many family/friends helped | Â |
 0  1  2  3  4  5 or more | 153 (30.3) 89 (17.6) 110 (21.8) 68 (13.5) 35 (6.9) 50 (9.9) |
Necessity of changing work situation due to caregiving2(before death) | Â |
 Time off work  Work as usual  Not working | 185 (36.3) 58 (11.4) 266 (52.3) |
Necessity of changing work situation due to caregiving3(after death) | Â |
 Time off work  Work as usual  Not working | 193 (37.7) 48 (9.4) 271 (52.9) |
Intensity of care in hours per week | Â |
  Personal care4 |  |
   0 h | 134 (27.0) |
   1–9 h | 159 (32.0) |
   10–49 h | 113 (22.7) |
   50 or more hours | 91 (18.3) |
  Help with medical procedures5 |  |
   0 h | 132 (26.8) |
   1–9 h | 234 (47.5) |
   10–49 h | 59 (12.0) |
   50 or more hours | 68 (13.8) |
  Going to appointments/treatment6 |  |
   0 h | 83 (17.2) |
   1–9 h | 319 (66.0) |
   10–49 h | 66 (13.7) |
   50 or more hours | 15 (3.1) |
  Help around/in the home (household tasks)7 |  |
   0 h | 60 (12.6) |
   1–9 h | 180 (37.8) |
   10–49 h | 156 (32.8) |
   50 or more hours | 80 (16.8) |
  Being on call8 |  |
   0 h | 46 (9.2) |
   1–9 h | 64 (12.8) |
   10–49 h | 73 (14.6) |
   50– all the time | 317 (63.4) |
  Time spent with the patient (doing things together)9 |  |
   0 h | 12 (2.4) |
   1–9 h | 79 (15.7) |
   10–49 h | 128 (25.4) |
   50– all the time | 285 (56.5) |