Table 1 Overall sample demographic characteristics (N = 16,586)
Variable | % (n) |
|---|---|
Age | Â |
Median (IQR) | 83.0 (13.0) |
18–64 | 8.1 (1339) |
65–74 | 11.8 (1953) |
75–84 | 29.2 (4849) |
85+ | 50.9 (8445) |
Sex | Â |
Female | 54.7 (9067) |
Male | 45.3 (7518) |
Marital Status | Â |
Never Married | 4.4 (737) |
Married | 39.2 (6506) |
Widowed | 41.3 (6855) |
Separated/Divorced | 6.5 (1075) |
Other | 8.5 (1413) |
Education | Â |
Less than high school | 33.5 (5555) |
High school | 16.4 (2711) |
Some college or university/technical/ trade school | 13.4 (2223) |
Post-secondary | 9.7 (1605) |
Unknown | 27.1 (4492) |
Disease Diagnosis (present) | Â |
Alzheimer’s dementia | 7.0 (1158) |
Other type of dementia | 24.3 (4033) |
Multiple sclerosis | 0.7 (115) |
Parkinson’s disease | 4.9 (806) |
Cancer | 26.5 (4391) |
Congestive heart failure | 26.5 (4387) |
Chronic obstructive pulmonary disease | 27.6 (4571) |
Renal failure | 15.3 (2533) |
Stroke | 20.4 (3378) |
Coronary artery disease | 33.0 (5480) |
Arthritis | 51.7 (8573) |
Hemiplegia | 2.5 (408) |
Any psychiatric diagnosisa | 16.0 (2648) |
Multimorbidity | Â |
0–4 | 49.8 (8264) |
5+ | 50.2 (8321) |
Activities of Daily Living Self-Performance Hierarchy Scale | Â |
Independent/minor supervision (0–1) | 27.3 (4523) |
Moderate/severe dependence (2+) | 72.7 (12063) |
Instrumental Activities of Daily Living (IADL) Involvement Scale | Â |
None/minor difficulty (0–13) | 20.6 (3284) |
Moderate/major difficulty (14+) | 79.5 (12697) |
Cognitive Performance Scale (CPS) | Â |
No/mild cognitive challenges (0–1) | 30.2 (5014) |
Moderate/severe cognitive challenges (2+) | 69.8 (11572) |
Caregiver Risk Evaluation (CaRE) | Â |
Low | 16.4 (2580) |
Moderate | 22.7 (3579) |
High | 39.2 (6165) |
Very high | 21.7 (3419) |
Indicators of a Bad Death | Â |
Severe signs and symptoms of depression | Â |
No (DRS score between 0–4) | 86.7 (14383) |
Yes (DRS score of 5 or higher) | 13.3 (2203) |
Self-reported Loneliness | Â |
No | 87.8 (14557) |
Yes | 12.2 (2029) |
Daily Pain that is severe, excruciating, or horrible | Â |
No | 82.5 (13682) |
Yes | 17.5 (2904) |
Pain that is severe/excruciating and not managed with medications | Â |
No | 91.2 (15121) |
Yes | 8.8 (1465) |