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Table 2 Demographic, diagnostic, and clinical characteristics of individuals across the four indicators of a bad death

From: How to define and quantify a bad death in palliative home care? Across-sectional and exploratory study using Canadian interRAI data

Variable

self-reported

loneliness

Experienced severe depressive symptoms

Experienced pain that was horrible or excruciating

Experienced uncontrolled pain

Column % (n)

No

(n = 14,557)

Yes

(n = 2,029)

No

(n = 14,383)

Yes

(n = 2,203)

No

(n = 13,682)

Yes

(n = 2,904)

No

(n = 15,121)

Yes

(n = 1465)

Median age (IQR)

83.0 (13.0)

83.0 (13.0)

83.0 (13.0)

81.0 (14.0)

84.0 (12.0)

81.0 (16.0)

83.0 (13.0)

81.0 (17.0)

Age (years)

18–64

8.0 (1160)

8.8 (179)

7.5 (1083)

11.6 (256)

6.9 (938)

13.8 (401)

7.5 (1131)

14.2 (208)

65–74

11.8 (1711)

11.9 (242)

11.4 (1632)

14.6 (321)

11.2 (1530)

14.6 (423)

11.5 (1732)

15.1 (221)

75–84

29.5 (4300)

27.1 (549)

28.9 (4155)

31.5 (694)

29.3 (4009)

28.9 (840)

29.2 (4421)

29.2 (428)

85+

50.7 (7386)

52.2 (1059)

52.2 (7513)

42.3 (932)

52.7 (7205)

42.7 (1240)

51.8 (7837)

41.5 (608)

Sex

Male

46.2 (6730)

38.8 (788)

46.1 (6627)

40.4 (891)

46.1 (6307)

41.7 (1211)

45.7 (6905)

41.9 (613)

Female

53.8 (7826)

61.2 (1241)

53.9 (7755)

59.6 (1312)

53.9 (7375)

58.3 (1692)

54.3 (8216)

58.1 (851)

Marital status

Never married

4.3 (632)

5.2 (105)

4.5 (643)

4.3 (94)

4.4 (599)

4.8 (138)

4.4 (665)

4.9 (72)

Married

42.1 (6127)

18.7 (379)

39.0 (5615)

40.4 (891)

39.1 (5354)

39.7 (1152)

39.1 (5915)

40.3 (591)

Widowed

39.7 (5776)

53.2 (1079)

41.8 (6015)

38.1 (840)

41.8 (5715)

39.3 (1140)

41.6 (6286)

38.8 (569)

Separated/ divorced

6.0 (877)

9.8 (198)

6.2 (887)

8.5 (188)

5.9 (813)

9.0 (262)

6.3 (949)

8.6 (126)

Other

7.9 (1145)

13.2 (268)

8.5 (1223)

8.6 (190)

8.8 (1201)

7.3 (212)

8.6 (1306)

7.3 (107)

Education

Less than high school

32.7 (4766)

38.9 (789)

33.5 (4819)

33.4 (736)

33.5 (4583)

33.5 (972)

33.6 (5083)

32.2 (472)

High school

16.1 (2337)

18.4 (374)

16.3 (2338)

16.9 (373)

16.2 (2222)

16.8 (489)

16.3 (2457)

17.3 (254)

Some college or university/technical/ trade school

13.4 (1943)

13.8 (280)

13.5 (1940)

12.9 (283)

13.4 (1827)

13.6 (396)

13.4 (2024)

13.6 (199)

Post-secondary

9.9 (1438)

8.2 (167)

9.8 (1403)

9.2 (202)

9.8 (1337)

9.2 (268)

9.7 (1468)

9.4 (137)

Unknown

28.0 (4073)

20.7 (419)

27.0 (3883)

27.6 (609)

27.1 (3713)

26.8 (779)

27.0 (4089)

27.5 (403)

Disease diagnosis (present)

 

Alzheimer’s dementia

7.5 (1091)

3.3 (67)

7.3 (1056)

4.6 (102)

7.8 (1060)

3.4 (98)

7.3 (1110)

3.3 (48)

Other type of dementia

24.8 (3608)

21.0 (425)

24.2 (3485)

24.9 (548)

26.2 (3578)

15.7 (455)

25.2 (3814)

15.0 (219)

Multiple sclerosis

0.7 (96)

0.9 (19)

0.7 (101)

0.6 (14)

0.7 (90)

0.9 (25)

0.7 (103)

0.8 (12)

Parkinson’s disease

5.0 (728)

3.8 (78)

4.9 (702)

4.7 (104)

5.1 (699)

3.7(107)

5.0 (761)

3.1 (45)

Cancer

27.2 (3961)

21.2 (430)

26.4 (3794)

27.1 (597)

25.3 (3460)

32.1 (931)

25.9 (3912)

32.7 (479)

Congestive heart failure

25.9 (3770)

30.4 (617)

26.4 (3791)

27.1 (596)

26.5 (3620)

26.4 (767)

26.4 (3996)

26.7 (391)

Chronic obstructive pulmonary disease

26.5 (3850)

35.5 (721)

27.1 (3903)

30.3 (668)

27.3 (3734)

28.8 (837)

27.4 (4138)

29.6 (433)

Renal failure

15.1 (2192)

16.8 (341)

15.1 (2167)

16.6 (366)

14.8 (2021)

17.6 (512)

15.1 (2284)

17.0 (249)

Stroke

20.4 (2974)

19.9 (404)

20.6 (2957)

19.1 (421)

21.0 (2878)

17.2 (500)

20.8 (3139)

16.3 (239)

Coronary artery disease

32.6 (4745)

36.2 (735)

33.1 (4756)

32.9 (724)

32.7 (4480)

34.5 (1000)

32.8 (4960)

35.5 (520)

Arthritis

50.3 (7316)

62.0 (1257)

51.2 (7362)

55.0 (1211)

49.8 (6819)

60.4 (1754)

50.7 (7660)

62.4 (913)

Hemiplegia

2.5 (356)

2.6 (52)

2.5 (353)

2.5 (55)

2.4 (331)

2.7 (77)

2.4 (366)

2.9 (42)

Any psychiatric diagnosisa

14.8 (2148)

24.6 (500)

n/a

n/a

15.3 (2091)

19.2 (557)

15.7 (2366)

19.3 (282)

Multi-morbidity

0–4

51.0 (7416)

41.8 (848)

50.6 (7282)

44.6 (982)

50.6 (6929)

46.0 (1335)

50.2 (7584)

46.5 (680)

5+

49.1 (7140)

58.2 (1181)

49.4 (7101)

55.4 (1220)

49.4 (6753)

54.0 (1568)

49.8 (7537)

53.5 (784)

Depression Rating Scale (DRS)

 

No/moderate signs/symptoms of depression (0–4)

88.9 (12941)

71.1 (1442)

n/ab

n/ab

88.9 (12166)

76.3 (2217)

88.0 (13300)

73.9 (1083)

Severe signs or symptoms of depression (5+)

11.1 (1616)

28.9 (587)

n/ab

n/ab

11.1 (1516)

23.7 (687)

12.0 (1821)

26.1 (382)

Activities of Daily Living Self-Performance Hierarchy Scale (ADL-SHS)

Independent/minor supervision (0–1)

26.3 (3833)

34.0 (690)

28.3 (4067)

20.7 (456)

27.6 (3774)

25.8 (749)

27.3 (4133)

26.6 (390)

Moderate/severe dependence (2+)

73.7 (10724)

66.0 (1339)

71.7 (10316)

79.3 (1747)

72.4 (9908)

74.2 (2155)

72.7 (10988)

73.4 (1075)

Instrumental Activities of Daily Living (IADL) Involvement Scale

None/minor difficulty (0–13)

19.4 (2733)

28.9 (551)

21.3 (2947)

15.8 (337)

20.0 (2632)

23.1 (652)

20.2 (2940)

24.0 (344)

Moderate/major difficulty (14+)

80.6 (11340)

71.1 (1357)

78.7 (10906)

84.2 (1791)

80.0 (10530)

76.9 (2167)

79.8 (11610)

76.0 (1087)

Cognitive Performance Scale (CPS)

No/mild cognitive challenges (0–1)

30.1 (4379)

31.3 (635)

31.3 (4500)

23.3 (514)

28.9 (3959)

36.3 (1055)

29.7 (4487)

36.0 (527)

Moderate/severe cognitive challenges (2+)

69.9 (10178)

68.7 (1394)

68.7 (9883)

76.7 (1689)

71.1 (9723)

63.7 (1849)

70.3 (10634)

64.0 (938)

Caregiver Risk Evaluation (CaRE)

Low

15.1 (2103)

25.8 (477)

17.2 (2341)

11.4 (239)

16.6 (2152)

15.5 (428)

16.4 (2349)

16.4 (231)

Moderate

24.5 (3400)

9.7 (179)

26.2 (3579)

n/ac

24.5 (3176)

14.6 (403)

23.7 (3401)

12.7 (178)

High

37.8 (5245)

49.8 (920)

36.5 (4978)

56.7 (1187)

37.4 (4855)

47.3 (1310)

38.1 (5467)

49.6 (698)

Very high

22.7 (3147)

14.7 (272)

20.2 (2752)

31.9 (667)

21.5 (2791)

22.7 (628)

21.8 (3120)

21.3 (299)

  1. a This includes signs/symptoms of depression as well as any other type of psychiatric diagnosis. b It is not appropriate to fill these cells in as they are measuring the same construct in the same way, with the same cut-off scores. c Individuals with a DRS of 5 + cannot populate the moderate group (moderate group can only have a DRS of 2 or lower)