Table 2 Characteristics of the included reports (N = 15)
Region | Author, Year | Design | Type of data | Sample | Aim | Technology | Ethical | Legal | Social |
|---|---|---|---|---|---|---|---|---|---|
Australia | Bradford, Armfield et al. 2014 [66] | Cost-minimisation analysis | Quantitative | Children in PPC N = 95 (video-consultations) | Comparison of costs of home vs. video consultation | Remote video consultation | Reduce burdens; increase trust; | Equal access; | Cost saving |
Australia | Bradford, Young et al. 2014 [67] | Qualitative, semi-structured interviews | Qualitative | Palliative care clinicians N = 10 | Investigation of home telehealth from clinicians’ viewpoints | Remote video consultation | Obstacle to quality of care; increase trust; increased autonomy/agency; empowerment; contact; | Privacy; equal access; | Cost saving & training; changing relations; communication issues |
North America | Breakey et al. 2022 [58] | RCT | Quantitative | Adolescents with cancer Age: 12–18 years) N = 81 | Evaluation of a self-management programme | Web-based | Increased burdens; | Participation in decisions | |
North America | Fortier et al. 2016 [53] | Pilot study | Quantitative | Adolescents with cancer Age: 8–18 years) N = 12 | Evaluation of pain management | App | Obstacle to quality of care; engaging | Equal access; | Cost saving; smartphones |
Europe | Hoffmann et al. 2021 [64] | Qualitative study; vignette usage scenarios | Qualitative | Adolescents with leukaemia or solid cancers Age: 6–17 years) N = 58 | Investigating the design process | App | Engaging; | Participation in decisions; standardisation | Smartphones |
North America | Hunter et al. 2020 [54] | Prospective, observational cohort study/RCT | Quantitative | Adolescents undergoing cancer treatment Age: 8–18 years Intervention N = 20 Control N = 28 | Efficacy of a pain management tool | App | Reduce harm; reduce burden; increase quality of care | Cost saving; smartphones | |
North America | Jibb et al. 2023 [55] | Parent co-design approach | Mixed Methods | Parents of children 2–11 years) with cancer N = 22 | Testing of a pain management tool | App | Engaging | Participation in decisions; | Changing relations |
North America | Jibb et al. 2017 [59] | One-group pre/poststudy design | Quantitative | Adolescents with cancer Age; 12–18 years N = 40 | Evaluation of a pain management tool prior to an RCT | App | Reduce harm; increase QoL; engaging; timely access to care | Participation in decisions; | |
North America | Jibb et al. 2018 [60] | Qualitative post pilot | Qualitative | Adolescents with cancer Age: 12–18 years N = 20 | Evaluation of a pain management tool | App | Increased burdens; increased autonomy/agency; | Equal access; participation in decisions; | Cost saving |
North America | Lai et al. 2015 [56] | Feasibility study | Quantitative | Patients with a cancer diagnosis Age: 7–21 years, N = 57 (and 13 clinicians) | Evaluation of a symptom monitoring and reporting tool | Web-based programme | Reduce burdens; information as burden; | Equal access; participation in decisions; | |
Asia | Mehdizadeh et al. 2023 [65] | Usability study | Quantitative | Adolescents with cancer and their parents Age: 7–14 Children N = 19 Parents N = 25 | Evaluation of a self-management tool | App | Empowerment; | Smartphones | |
North America | O’Sullivan et al. 2018 [61] | Qualitative pilot study | Qualitative | Children with cancer Age: 8–18 N = 20 | Evaluation of a symptom screening tool | App | increase trust; engaging; participation; | Privacy | Cost saving & maintenance; smartphones |
Europe | Tiozzo et al. 2021 [63] | Observational prospective study | Quantitative | Children with hematologic or solid tumours Age: 4–21 N = 124 | Evaluation of a pain management tool | App | Improved quality of care; empowerment | ||
North America | Weaver, Robinson, et al. 2020 [57] | Case series. | Quantitative | Children in home hospice for end-of-life care + Caregivers + HCP Children N = 15 Caregivers N = 13 HCP = 15 | Acceptability of telehealth in homes | Remote video consultation | increased autonomy/agency; empowerment; participation; increased burdens | Equal access; participation in decisions; | Cost saving; changing relations |
Europe | Weibel et al. 2020 [62] | Qualitative pilot study | Qualitative | Children with cancer and their social connections Age: 12–14 Children N = 3 Parent N = 3 Teacher N = 2 Peers N = 15 | Exploration of social and academic connections through an avatar presence in schools | Robot/avatar | increased autonomy/agency; inclusion; exclusion; empowerment; contact; increased burdens | Equal access; | Cost saving & training |