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Table 1 Overview of the quality domains of the PROMs used

From: Healthcare professionals’ perspectives on assessing selected patient-reported outcome measures in specialist palliative care institutions: a multi-country mixed-methods study

Collected PROMs and their domains

EQ-5D-5 L

• Mobility

• Self-care

• Usual activities

• Pain/discomfort

• Anxiety/depression

ICECAP-SCM

• Having a say

• Being with people who care about you

• Physical suffering

• Emotional suffering

• Dignity

• Being supported

• Being prepared

IPOS

• Pain

• Shortness of breath

• Weakness/lack of energy

• Nausea

• Vomiting

• Poor appetite

• Constipation

• Sore or dry mouth

• Drowsiness

• Poor mobility

• Anxiety in patient

• Anxiety in relatives

• Depression

• Feeling at peace

• Sharing feelings

• Receiving information

• Practical problems being addressed

ESAS

• Pain

• Tiredness

• Drowsiness

• Nausea

• Lack of appetite

• Shortness of breath

• Depression

• Anxiety

• Wellbeing

• Other problem

• Location of pain

  1. Legend to Table 1:
  2. Abbreviations: PROMs = patient-reported outcome measures, EQ-5D-5L = EuroQol 5 Dimensions 5 Levels, ESAS = Edmonton Symptom Assessment System, ICECAP-SCM = ICECAP Supportive Care Measure, IPOS = Integrated Palliative care Outcome Scale