“You like to be in control of your own destiny to a degree, don't you?”: conscientious autonomy and planning for future care with dementia

Table 1 Achieved sample

Geographical area
	Gateshead	Sussex	South London
Interviews (n = 28)	10	12	6
Participants (n = 47)	17	21	9
Gender
	Men	Women	Total
Carer	11	20	31
Person with dementia	8	8	16
Total participants	19	28	47
Carer’s relationship to person with dementia
Spouse	18
Child	9
Child-in-law	3
Other	1
Total carers	31
Individual, dyadic or triadic interview
Total interviews	Individual	Dyadic	Triadic
Total interviews	11 (9 carers, 2 people with dementia)	15 (18 carers, 12 people with dementia)	2 (4 carers, 2 people with dementia)
Other demographics
LGBT	1 male gay couple
Ethnic minority	1 carer
Person with dementia without family carer	2
Interview mode
Total interviews	Face-to-face	Online	Telephone
Total interviews	24	2	2
Future care planning undertaken
Informal conversation	28
LPA (health and care)	20
Advance statement	9
Advance decision	8
DNACPR	6

ISSN: 1472-684X